Bullying and Chronic Illness

Living with a chronic illness is an intense stress and burden upon one's self and when it is coupled with resulting medical trauma, it is a recipe for mental health concerns regarding adjustment and coping. When you add a young age and bullying to the mix, it can be disastrous.

I always thought that my morbid death orientation and twisted sense of humor stemmed from the medical trauma I endured as a child. I was partly correct. During my own soul searching, I had an epiphany and realized my obsession with death didn't really exist until I was bullied during my 6th grade year - two years after my first surgery.

I had my first surgery at the end of my 4th grade year. Over the course of a year I would survive 5 surgeries and a near death experience and develop PTSD. Far from the expected two surgeries I was scheduled to have to place a temporary ileostomy and then reverse the ileostomy with a jpouch by the end of the summer break. I was home schooled during my 5th grade year due to my unstable health and frequent hospitalizations. As I prepared for my 6th grade year, I was malnourished and my doctors diagnosed me with relative anorexia. I was placed on a weight gaining diet and began to stabilize physically. As I recall, I was beginning to mentally survive as my PTSD was calming down with the reduction in medical procedures. I was adjusting the best I could to my unexpected ileostomy that was believed to be permanent. However, I was anxious to start back to school, particularly as 6th grade meant middle school - a new level without a transition and I had lost contact with the majority of my grade school friends during my year of absence. I wasn't psychologically ready for this change and I pleaded with my parents for an alternative. My parents opted to transfer me to a different school district that still held 6th grade in the grade school to allow me time to acclimate to returning to public school. In the end, this was a great decision as I would come to enjoy my school district and experience a challenging education with fantastic teachers that would prepare me well for college and a large group of close friends who supported me in my future health issues during my high school years. Unfortunately, this end result would require me to survive a very difficult time first.

My 6th grade year started off well. I was the new kid in school and painfully shy. I had no sense of fashion or style. I wore baggy pants and long, oversized t-shirts frequently to fit my level of comfort with my new body. I was uncomfortable wearing anything that might give away the presence of my ileostomy. I was introduced to a group of girls and was accepted. I managed to make several friends and all was going well.

That is, until winter break ended and I returned to school to find myself shunned by everyone I knew except for two girls - who were not in the circle of girls who orchestrated the shunning. Unfortunately, I didn't have classes with these two girls very often if at all and so I was left to myself the majority of the time. I was bullied relentlessly for the remainder of the school year. The bullying was led by two girls in the previous circle of friends I had enjoyed. I was never given an explanation for why my previous friends had shunned me and told others in our grade to shun me as well. I began to spend my recess in the classroom with my home room teacher as it was lonesome to play by myself outside everyday and one of the girls would often hit me in the head with objects such as hand sized rocks or hard plastic lunch boxes. My days were spent simply trying to survive so that I could return to the safety of my home.

The combination of this bullying with the medical trauma I had experienced within the previous two years was too much for my childhood self. I was no longer able to maintain coping and I became consumed by hate and anger. I was angry at my classmates for bullying me, at my parents for my disease, health, and for giving birth to me, and at my medical providers for my ileostomy and near death experience. I no longer was learning to cope and adjust to a life with an ostomy. My coping mechanisms became an obsession with death - my own death and the death of those I despised. Quite frankly, I became suicidal and homicidal. I prayed for my death and the death of others everyday for hours while fantasizing about our deaths, planning and plotting how I could bring about death. I had opportunities I could have taken to enact my devious plans. And yet, my health saved me and others from myself.

I managed to stay out of trouble during adolescence thanks to my health. My health made me timid in many ways and helped narrow my chances for typical adolescent mischief. I was too often ill or felt inhibited by my health to partake in high risk behaviors or activities. This inhibition coupled with my logical mind kept me from harming myself or others. Not only did I joyfully envision the demise of myself and others - I also envisioned the repercussions of such devious actions. Knowing the likely consequences that would occur if I acted upon my devilish desires kept me from harming anyone.



FAPVoice Bullying

Survey Results

The effects of bullying was far reaching for me that could have resulted in disaster for myself and those around me as well as their loved ones if it wasn't for my own ability to logically think through my thoughts. Unfortunately, this isn't the case for everyone who is bullied. Far too often individuals are completing their suicidal or homicidal desires causing great devastation. In the age of technology, bullying is growing, reaching vast audiences and victims.

FAPVoice launched a survey to determine the prevalence of bullying among their community members. I was heartbroken to read the stories of others' experiences. It's become common to hear about bullying within schools. I didn't expect to hear about bullying within the work place or from medical providers and family though in regards to chronic illness. I was particularly bothered by the story of one individual who felt bullied by her family and medical providers due to her medical decisions.

The sad fact is that we can encounter bullying anywhere and from anyone. But there are things we can do. We can stand up for ourselves and for others. We can reach out, understand, and educate.

Consider joining forces with anti-bullying groups and campaigns, such as No Bullying - a global source for education and support to stop bullying.

Regardless of your age, your place, your role or your avenue. You can make a difference.

A Surreal Life

A year ago my life was very different than from what it has become, it is drastically different from 2 years ago. I never would have imagined that I'd be where I am at now in my life. I foresaw my life being very different in 2016 than what it presently is. And yet I'm full of gratitude and amazement as I struggle to believe my present life is reality.

To fill you in, a lot has transpired in the last 24 months:

• I decided not to have any children because of my health and FAP 
• My husband was diagnosed and hospitalized with diabetes
• My marriage began to fall apart
• I entered a bout of extremely severe depression
• I was hospitalized for the first time in 8 years
• I developed increased chronic pain and started having chronic nausea
• I went on a dream family vacation to Alaska (highly recommended by the way)
• One of my very beloved great uncles died at 99 years old
• Estrangement from some very dear friends and family members
• Marital separation
• Moved back home to my parents
• Divorced
• Bought a house
• Became independent once again

Not everything that has happened in the last 2 years has been a hardship. In spite of very difficult, trying situations throughout the last 2 years every situation has held life lessons for me and has helped me grow as an individual.

I psychologically surivived situations I never imagined I would face and wasn't sure I would survive at the time of their occurrence. And yet, with each hurdle I became stronger and fiercer. I never saw myself as a survivor or as a brave person before in spite of surviving 7 surgeries, near death experiences, and the cancer that was developing in my body. I've lived through PTSD, suicidal ideation, and severe depression. I've survived the physical and emotional loss of many. I survived. I learned I am strong and after I've faced physical and psychological torments, I can survive anything.

It's true that we don't realize how strong we are until we have no other choice. Feeling on the verge of a mental breakdown for months on end last year, my mind somehow held onto the smallest amounts of hope and strength to keep me alive to fight another day. And now, I'm stronger than ever before. Now, I'm prepared to fight whatever future fights may be in store for me. I know I've survived the worst psychological torments I've ever encountered and it's only up from here. Even my bad days are not my worst days because those are behind me.

I've harnessed my inner strength that for far too long I didn't know existed. It's easy to ignore our inner strength. We tend to minimize our feats of mental strength. We become accustomed to survival mode without acknowledgement of what it actually takes to survive. We get caught up in surviving day to day without relishing in the fact that we are surviving. Let us stop cheating ourselves. Let us honor our strength and harness it. When we bear witness to our strength we honor ourselves, our survival, and our life. We begin to free ourselves of the draining mental fight by power housing our strength. Thereby allowing increased utilization for continued survival and breaking free of our mental chains. And after the fight, we will realize that we deserve to be free.

Standing Together

Today was a physically taxing day. I woke up not feeling my best and it worsened as the day drew on. I ended leaving work early due to stomach pain and bloating. As soon as I returned home, I crawled into bed to rest. I was worried about feeling better in a few hours. After all, I had to prepare for an evening interview with Lee Silverstein, The Colon Cancer Podcast.

It's amazing how much rest the body can gain from simply lying in bed for a couple of hours. My body knows that once it's lying down that it doesn't have to work hard or stress. My mind can relax with my body and together they can begin to mend themselves. And it worked; although I don't feel like completing projects this evening, I am left feeling energized with adrenaline and hope for the future.

I must give credit for the rejuvenating energy to my conversation with Lee though. Sometimes it's hard for me to speak with others. I often find myself emotionally drained after visiting with others. Perhaps that is more to do with my line of work as a medical social worker. Sometimes talking is the last thing I want to do after a long work day of focusing on and assisting others with their life issues. But after conversations such as tonight's conversation with Lee, I'm reminded just how much we need others in our lives. Support, whether it is online or in person, is an integral part to life and for our well-being.

The internet has become alive with multiple support resources for every issue imaginable. I'm amazed by how tangible support is now than what it was even just 10 years ago. With a rare disease, I didn't know anyone outside of my family for years with Familial Polyposis. And now there are social media groups and websites solely devoted to Familial Polyposis. And the case is the same for countless other rare diseases.

As wonderful as these online support resources are, we mustn't forget how important in person support remains. It's easy to take the easy way of communicating digitally with others through text and online messaging services but there still remains nothing quite like in person visitation. In person visitation forces us to reduce our isolation that we often succumb to with chronic illness due to how debilitating our health symptoms can become. In person we can give and receive physical support - hugs, shared tears, even household assistance.

In person visitation can be physically stressful as it forces activity upon us yet I'm always glad I forced myself to leave the house or prepare for a visitor afterwards. It reminds me of the importance of friendships. Not everyone we talk to has to have chronic illness so let us not abandon our other friends.

If you're isolating yourself because of your health, you can break through the isolation. Remember, isolation can lead us to depression and can worsen already existing depression. Depression will tell us not to interact with others and by engaging in activity we loosen the bonds of depression. However, I understand how daunting activity and socialization can be, especially under the stress of depression. Because of this, I start with a small, achievable goal as this reduces the feeling of being overwhelmed and with each small step, the next becomes easier.

We all need support, no matter who we are or what we're facing. Reach out when in need and reach out to another during their difficult times. Socialization is a wonderfully rewarding gift we can give each other.

Tainted Moments

It's been six months since my divorce was finalized and 10 months since I separated from my now ex-husband. Life has become easier in those 10 months as I learned to accept my marriage had ended. I felt ahead of the game as I had been given the opportunity to start the grieving process months before I made the decision to divorce. I realize there is no going back, nothing to fix what transpired, there is only moving forward. There are moments, days, even months of unceasing happiness where I'm dulled into thinking I've fully moved past my marriage and divorce. But these are only passing moments of falsehood that are ripped to shreds with backslides of emotional torture and backlashes of the destruction to my life that have occurred.

Divorce is a horrendously emotionally destructive force that tears apart the psyche and the heart. Albeit necessary and unavoidable at times. It has an inescapable far reaching grasp on life after divorce. Day by day I learn to live without the one person I considered to be my true soulmate and countless other adjectives to express how much this person meant to a cautious heart that didn't expect or believe it would find or receive what was given in the span of nearly 7 highly fulfilled, unconditionally loving years. And in spite of my daily learning and adjustment, I've come to expect that the milestones of my new life are haunted by my marriage and divorce.

This wasn't an easy expectation to accept. I was blindsided after my divorce time and time again. I experienced long stretches of excellent coping with how my life was unexpectedly altered. I was happy, free of heartache, and enjoying life only to be emotionally slammed when I would accomplish a life milestone by the haunting remnants of my marriage. With each milestone or accomplishment, I'm reminded that I was supposed to be experiencing these moments with my husband not on my own or with another person. And the grieving of my marriage is renewed each time. Grieving that is soul breaking.

Divorce doesn't come in a neatly wrapped package with a guide of what to expect. I've learned one can never truly be prepared for how divorce affects the heart and life afterwards. I will be coping perfectly fine one day and my peaceful existence will be ravaged by the heartache of divorce without any warning.

Presently, I'm in the process of buying a house and as the closing date nears the worst my grieving becomes. It started the day after my bid was accepted by the seller. A couple days later my divorce's death hold loosened. Now, a little over a week away from my closing date and the death hold is tightening again. This is an exciting milestone with great promise for my future. And yet it is tainted by my marriage.

Somehow, I must force myself through the renewed grieving process and continue to forge ahead on the new paths my life holds for me as a divorced person. Otherwise, I will never be able to enjoy the wondrous milestones my future holds for me. I'm still learning how to break free of the death holds my divorce periodically has upon me. I'm told by other far more experienced divorcees that I will experience such grieving periods for 3-5 years as my heart heals and over time life becomes easier.

In the meantime, I must keep sharing my pain with loved ones who will listen to me. I take refuge in the understanding arms of other divorcees who are able to relate to my experiences unlike others who haven't experienced divorce. I restarted therapy. And beyond these steps, I'm not sure what else to do at this point. But I'm taking steps to help my heart heal and enjoy my life's milestones, tainted as they are.

Don't Shut Me Down

I was going through another bout of depression. Not anything particularly new for me. I've battled depression since childhood when my chronic illness started. I've completed years of psychotherapy and resume counseling when needed. Although the triggers of my depression vary, it usually surrounds my health and now my divorce. And occasionally I go through bouts of feeling that life is pointless and I'm simply waiting for death. These bouts can easily become a struggle for me and I frequently reach out to friends when I'm starting to feel the pull of depression again. That is, until I'm shut down for reaching out.

It takes courage to reach out to someone when we are at our most vulnerable point; when we are emotionally raw and desperate for some semblance of peace or happiness. It's not easy opening up to others about depression especially when depression cycles periodically. We often feel like a burden to those around us and tend to struggle with our emotions on our own until we reach a breaking point where we feel we must talk to someone - for our own sanity and safety. Therefore, when we reach out it shouldn't be taken lightly. So when we finally muster up the courage to reach out for a listening ear it can be devastating when we are met with responses telling us to stop talking about what we are feeling and experiencing simply because the person doesn't want to listen or is uncomfortable with what we are sharing.

I was met with such words the last time I reached out to a friend. I can only presume that my depressive feelings was causing my friend to feel uncomfortable but as I read his words telling me to stop talking about what I was feeling I was instantly shut down. No longer did I feel safe turning to this person who wouldn't let me openly talk about my depression. No longer did I see a friend who cared for me but rather someone who wouldn't listen to my words, my pain, my cry for help. I felt betrayed. I thought this person was safe and would be there for me in our friendship. I was wrong and it stung my hurting heart.

When this happens, not everyone will reach out to another person. One rejection for help is
destructive to the psyche and the remaining emotional reserves that we cling to in our times of need. For someone whose depression has resulted in suicidal ideation, there often is not a second cry for help. A suicidal person uses the small remnants of hope and what is remaining of their emotional strength to ask for help and when that help is rejected, there is no more hope for help or recovery. When we lose hope, we lose ourselves.

It is difficult to look past a trusted person's dismissal and betrayal of our cries for help but for our own well-being we must look past another's behavior and try again. There is always someone who is willing to listen whether it be someone we personally know or someone available through online support groups or phone hotlines. We must remember this and hold strong to this knowledge.

If you happen to be privileged with the trust of a hurting person, please be mindful of what this person is experiencing. This person is simply asking for your support and understanding. Sometimes a hurting person doesn't need advice or even words, just simple acknowledgement of their pain. And if you're worried about a hurting person's safety, kindly express your concerns and direct them to professional help whether it is counseling, hotlines, or even 911 in the case of an emergency.

To the Broken Hearted

After disclosing about my own journey through broken heartedness and divorce while dealing with my chronic illness, I heard from several people who had gone through similar trials and it touched my heart.

Regardless of the type of relationship, those of us with a chronic illness are more vulnerable in our relationships than our healthier counterparts. We open ourselves in ways others aren't forced to expose. We are more at risk of losing ourselves as we learn to lean on another to help us through our health struggles and we begin to share our health experiences with another. When the relationship ends, regardless of reason, we are vulnerable as we regain our footing and independence.

This is dedicated to all those who are broken hearted and struggling.

Your soul has been ripped apart as you stare down at the tattered pieces of your heart.

The pain sears your soul leaving you tender, hurt, and confused.

All that you knew changed in an instant and you're left not knowing where to turn or what to do.

You fell into a spiral of lost control frantically grasping to regain your footing.

I've been where you are now. My soul was torched, my heart in pieces, and my spirit broken. I didn't know what to do. My sole remaining purpose was just to survive. My mind couldn't handle more than mere survival. I was trapped, suffocating in my heart break, desperately clawing at my own spiritual grave. Clawing for relief, for light, for healing.

One day my heart mended enough that the suffocation began to lessen bit by bit until one day I burst forth from my grave and found myself soaring with the strength of the eagles. A transformation was taking place but it could only occur after the flames of soul searing pain had burned long and hard until finally extinguishing themselves.

With a new found strength I realized I deserved better. A better state of mind, better days, a better life. I accepted that I deserved happiness and that I could create my own happiness by being true to myself. I learned to accept myself, to do things for myself, and to follow my heart. I was only able to learn these lessons though after I felt my pain and survived it. I was stronger and better for it.

Your days may be long and your nights hard. Your tender heart vulnerable in its current state. But you will not remain here. You will burst forth from the flames that presently surround you. You will survive and be better for your heartache. Let yourself feel the pain so that you may process the pain. Take the time you need for self-healing and self-loving. Make this part of your daily ritual for self-care.

This is your time, your life. No one can steal this grand moment in the making from you without your permission. Savor this moment, relish in your self-worth. You are worth it and so much more. You are not your heartache. You are a survivor with a story to tell and a life to create.

Anxiously Awaiting

The last year has been a monsoon of emotions and personal events that included a long bout of depression from increased health issues, the death of a beloved great uncle, and the emotional loss of individuals I once deeply cherished. With the ups and downs of the last year, I embarked upon a path of self discovery and self transformation. I am finding peace within myself and loving every moment of it. However, patience is by far not my strong suit.

There is a great number of things I want to accomplish this new year yet I'm constrained by time. Time inhibits my ability to complete my actions, my goals as quickly as I'd prefer. I must wait for the right time or for the process to be completed for each personal goal. I'm left anxiously awaiting the passage of time as I fervently work toward creating the life I want.

There are times when my eagerness surmounts in an exhausting, terrifying ball of anxiety. It catches in my throat, words can barely be uttered. Tears well up in my eyes, desperate to escape. My chest tightens, constricting upon itself as my mind races trying to calm itself. I repeat my self soothing mantras, frantically reminding myself that it is only anxiety...I'm not having a heart attack. Although it feels like it.

It's easy for us to get ahead of ourselves when we are so intent, so earnest for the arrival of what we want. It doesn't matter what it is, we tend to want what we want when we want it. It's hard not to jump ahead and just have what we want. We think if only we could fast forward time! The world doesn't work this way though. We need to wait for others, we need to allow time for the process, or we need to move forward in a systematic way - achieving one step at a time. But really what we need is to simply learn patience and enjoy the journey. The journey is what fulfills us after all. The ability to look back and realize I did this, I accomplished this, this was me!

Learning patience isn't easy. As a highly impatient person, I feel as though my strides in learning patience are minuscule even though I notice a difference in how far I've come in the process.

When the anxiety of impatience has a stronghold upon me, I have to remember a lot.

• I remember it's merely anxiety. If I want to calm myself, this is the vital first step. Until I understand it's just anxiety, my mind will keep racing and heaving more anxiety upon me. Self talk and breathing are essential in calming my anxiety provoked fears.
• I remember what I'm doing to achieve my goals and what I still need to do. I map it out. Where I've been, where I'm going.
• I remember my plans for reaching the next steps in my plans. Without steps lined out, I'm simply waiting without direction.
• I remember I'm doing everything I possibly can. Some things are out of my control but I'm doing what is within my control. I'm not passively sitting and waiting. I'm taking action.
• I remember it isn't always the right timing. I won't be able to obtain solutions until I can gain more answers. Answers that are only available when the timing is ripe.

The next time the anxiety of waiting hits, remember where you are, where you've been, and where you're going. This helps to keep the small details in perspective to the larger picture at hand. Although the journey of patience can be infuriatingly frustrating and difficult at times, in the end it is far worth allowing the process to take its course. We gain great insight, wisdom, and skills when we push the anxiety aside and continue on our path.

In The Stillness

I typically find myself anxiously awaiting the new year and the changes it brings. A freshness and newness to the staleness of daily life. New challenges and goals set forth with endless possibilities. The excitement can be overwhelming.

But not today. Today I just want stillness. I want to savor today's moment without the past lurking over my shoulder or the future calling for me.

Today I'm devoid of feeling, of stress, and worry. My soul, battered by the barrage of life's daily circus, longs for solitude.  No longer racing with a myriad of thoughts, my heart quietly beats and my mind lingers amongst itself in a somber atmosphere careful to not break the stillness.

Today I rest my tired body and soul, with eyes closed as I listen to the sounds in the distance; shutting out the demanding voice of life and instead merely existing. Now is not the time for continued self analysis in a constant state of self discovery and transformation. Nor is it time for tackling the never ending duties required for living. No, it is a time for a stillness that allows recharging for the mountains that lie ahead. There is much work in reaching the summit. Battles for passage and testing of strength and fortitude. There is much to be lost so that much may be gained. It is an exhausting battle.

Tomorrow is the day to let my battle cry ring out from my chest, from my soul. A battle cry to accept nothing less than the best of myself. I will take the hardness of life and I will create, forge, and transform it into survival and light. It will etch its name upon my soul. I will become it and I will know no difference.

But not yet. Today is the day I take for myself, away from the battle scene. I let the stillness wash over me, soothing my spiritual aches. Tucked away in a quiet corner of the world. I question myself not, I search myself not. I simply be. I be in a world of violence and beauty; a world of demands and gifts; a world of damage and healing. Tomorrow I fight. Tomorrow I climb.

Feeling Your Heart

Life is a confusing, beautiful mess full of opportunities for both joy and heartache. We can take many paths in our navigation through what life offers us yet we often choose the most complicated route. We consume ourselves with fear and worry about the dreaded what if's that are never entirely answered properly as our imaginations our set free in a whirlwind of confusion. Life is not necessarily simple in our experiences but I believe we can simplify our paths by merely feeling our hearts.

Tuning into our hearts and what we are feeling can be called many things: inner voice, intuition, gut instincts, faith, etc. Whatever your preference for terminology, paying attention to the words of our hearts and souls seems to make a difference. We allow ourselves to obtain peace and comfort as we make life decisions and let go of anxieties when we listen to ourselves.

Listening to what our hearts say can only occur when we are honest with ourselves - free of preconceived ideas and intentions. We must open our minds and ourselves to all realities, not just what we want. It is easy to confuse what we want with what we need, whether it's physical, emotional, or financial. We all have ulterior motives to obtain what we want even when dealing with ourselves.

As we begin letting go of that which holds us captive through fear and anxiety, we learn to make the best decisions we can with the information we have at the time. Part of this information is knowing how we feel about a situation and about the options available.

We listen by identifying what we are feeling and allowing ourselves to feel those feelings rather than rushing through one feeling to the next. This helps in all realms of life whether it is releasing fear and anxiety, making a decision, resetting ourselves spiritually, self-discovery, and coping with life. It is particularly useful in emotional healing from grief or trauma as we cope and adjust to a life change. Not allowing the process to flow naturally and completely can be harmful as we can delude ourselves in believing that which is false within us. Rebound relationships, incomplete grieving, and yoyoing of depression and anger are common examples of rushing this natural process.

Let us not hide from our feelings, viewing them as a weakness or an inconvenience. Rather let us honor our feelings for what they are - a gift that lets us experience life in the fullest. Joy and heartache are neither to shrink back from - both lead us to the depths of unimaginable feelings and experiences that ultimately try to teach us gratitude and strength.

Letting Go

On the drive home, surrounded by darkness and music, I felt a peace come over me and in that moment I recognized the novelty of this peace. It was a peace I haven't felt before in my lively, waking moments. I felt lighter, no longer bogged down by moments of the past - whether recent or long ago. I finally understood the feeling of having no regrets. I had somehow, magically let go.

This year has become to be a time of teaching for me as I continue along the path of transformation as a fire storm scorches my soul to reveal new layers. With a new sense of strength and fierceness, I am finding challenges for myself to push past my limits. I am rediscovering and redefining myself. This must be a new layer, a new level reached - I thought to myself as suddenly the stars shined brighter and the night air felt crisper than they had mere moments before. I no longer cared about all the mistakes I had previously made. Mistakes, big and small, that I lamented over for years at a time. As a soft hearted, highly sensitive person I tend to spend an exorbitant amount of energy and time reviewing details of my life and interactions. Replaying moments as they occurred and the innumerable various scenarios that could have occurred with different actions or decisions. No longer was my mind shackled with such worries. All that mattered now was this moment on - my future.

Too often we worry about what we should have done or what we wish would have happened if only we had the foresight to know the outcomes of the situation. My parents taught me to make the best decision I possibly can with the information I have. We simply need to do our best. It may not turn out to be the right decision but it is giving the moment our best that is important. I believe in this advice even when I haven't followed it closely as at times I knowingly made mistakes and other times I failed to let go of my wrong decisions. 

There is much more to life than our regrets. I once held the belief that to live without regrets was to not care about our actions and the consequences. I have learned that living without regrets is relinquishing the control regrets may have upon us. We can become full of regrets that cripple us - filling us with anxiety, fear, and anger. Fear and anxiety of future decisions and anger toward our past decisions. These reactions are not healthy but are stifling of growth and acceptance. We must learn from our mistakes and our failures so that we may make better decisions in the future. This does not mean we are required to carry the burden of those mistakes once we have learned from them. Rather let us live and learn then let go. We are unable to change the past no matter how hard we wish or how long we lament. Let us direct our energy to the future and the goodness that is waiting for us.

I do not know how I suddenly came to this freeing moment. It was not a conscious decision. It merely swept over my mind and body in an unforeseen wave. Is this not the way most epiphanies come to us though? When we let our minds freely wander, our subconscious to come to the surface without inhibition. Allowing access to the greatest depths of our minds and souls - to reconnect within ourselves. Thinking without intent, without reservation, without prejudice. These are the moments that grant me insight and revelations.

I like to take a moment, preferably in the sanctity of the outdoors. Feeling the grass under my feet, the dirt between my toes. Closing my eyes and raising my face to the sky, feeling the sun shining down upon me. Deeply breathing in the air, as it fills my lungs before slowly exhaling. Clearing my mind and focusing on the physical sensations of the world around me and my body. My eyes will begin to feel heavy while closed, my mind drifts in and out of consciousness. I become relaxed, connected to my spirit. The sounds around me grow faint in the background as I listen for the still voice deep within me. I remain in this trance like state until my spirit releases me and sends me back into the awareness of the physical world around me. I awaken refreshed, free of stress and worries and sometimes with a new revelation. I encourage you to follow this or your own style of meditation and discover what is lying under the surface.

Let The Fire Burn

The last seven months have been an incredibly difficult, transformative, and freeing period that is truthfully just starting. For when such a process begins, it can't be confined to a mere few moments in time - not if you submit yourself to the process. For when you submit, the transformation truly begins and it can become a lifelong, marvelous journey.

I fought a new bout of depression this year; that old friend of mine that likes to seep into the depths of my mind and heart and squeeze my very life in its cold, dark claws as it whispers to me, gently bidding me to join its ranks of peace and tranquility. A peace only found in the abyss of death, where there is absolute nothingness. A nothingness that consumes you to the point that there is no pain, worry, or grief. It's a peace that I once was honored to experience briefly and so it calls to me, reminding me of a time long, long ago.

But as I struggled against its calls, strong though they may be, I resurfaced. And not only did I resurface but I found a new appreciation for my life, for my time on this earth. I found a strength within me I never knew was there. A strength that is greater than that which I harness for and through my health battles. A strength that is beyond the physical. All my battles have primarily been against the physical realm. Fighting for my physical life, my physical body against the physical effects of my rare disease and the tolls it takes on me.

I have been pushed past my breaking point yet once again, only this time it wasn't because of my health. I was thrown into a fire and though the flames continue to surround me, I am beginning to see the traces of smoke filtering in amongst the flames. In being pushed to my limit by multiple individuals and situations this year, I'm being transformed and am continually finding new limits, horizons, and restrictions to break. I am by no means done with this personal growth, this new found freedom. The flames continue to do their busy work of burning my outer layers to allow my soul within to shine and to shine brightly. And thanks to these flames, I am happier with myself and more free than I have been in years.

These flames schooled me in dealing with what life and others may throw at you and how to stay afloat. I'm learning to let go and not worry. To take care of myself rather than waste my time and energy on worrying about how others are going to affect me. That is not the same as no longer caring about others. Rather, it's a freedom from the restraints we often allow others to place upon ourselves.  No longer allowing others to control us and our actions and moods.

Instead of trying to figure out what life will be like and what the right direction to take is because of someone else, try setting your own life goals and going after them with tenacity, intensity, and fierceness. No longer letting another control your life's direction will break you of the restraints and life will realign. You will become focused. With that focus, you will discover what is most important to you and establish your own standards for living. Finding yourself, what you deem important, and the satisfaction of independence in your pursuit will lead you to intense happiness and freedom. Levels of which you wouldn't know when you allowed yourself to cower to the standards of others rather than your own.

Realize you can and you will survive on your own without others. I never thought of myself as an independent woman until this revelation was nearly forced upon me. I became overfilled with strength and pride with such a powerful revelation. A lot of us see ourselves as independent solely on our ability to financially provide for ourselves without assistance from another. Although this is a caveat of independence, it doesn't end there. There is so much more to being independent than simply being financially independent. Do you feel able to survive the loss of those dearest to you? I've survived the death of countless individuals I greatly loved and admired but what about the physical loss, the emptiness that can be summoned when we lose someone physically and emotionally though they remain living? My world felt as though it was crashing in around me with such non-death losses. I felt as though I had lost a part of me and perhaps I had in the process of giving a part of me to those I have loved. When forced to the brink though, you will learn you can survive any loss regardless of the severity and difficulty. This doesn't mean you become cold-hearted. Far from it, you simply are able to harness your inner strength rather than solely relying on the strength of others.

No longer care what others think of you. When you lose respect for someone, that person's opinion no longer means anything anyway. Don't waste yourself on those who have already lost your respect. Cherish those who are true to you - those who are supportive, loving, caring, and there with you through the brightest and darkest times of your life - not those who try to create dark times, tear you down, harm you with their malicious intent and manipulations, leave you without explanation. Don't let yourself succumb to the power of others, especially when it is a harmful power. You don't have time for that nor should you.

Don't take the dangerous, personal issues of others on as your own. People will attempt and succeed at betraying, manipulating, deceiving, and harming you. The reasons for others to inflict such pain on another is deep seated within them. Stop trying to decipher the reasons behind their actions. Their reasons don't need to make sense. Their reasons are just that, theirs. Not yours. Do not take on more pain simply because another is engaging in harmful behavior towards you.

Do what you've longed to do but was too scared to commit to previously. There is immense freedom in letting your inhibitions go and doing what you've always wanted to do. Perhaps you refrained yourself because you worried about judgment from others, didn't consider it proper, or didn't think you had it in you to attempt much less complete. Forget that and jump in. I've learned that there are personal challenges our spirit is drawn to for whatever reason. Your spirit gravitates you toward such challenges and won't let you forget about it - even if you bury it for years under fear and inhibitions. If you feel that unceasing tug, your spirit is speaking to you. Sometimes it speaks to you softly, the action may be small but it appeals to you at a deep level. Other times it screams at you out of no where, forcing your attention even if you remain refrained. Let your shield down, accept a self challenge, and let yourself be free.

Whatever the source is for your fire, it will be a long process of adjustment and coping as your outer layers become scorched and the pain sears your soul. Turmoil presents itself with a variety of emotions and stages, often sending you bouncing back and forth amongst them all repeatedly before you are finally able to find your footing enough to begin to walk a more level path through the flames. As the outer layers begin to crack, forcing you to think your mind will crack as well you will want to speed along the process and jump to the end simply to lessen your pain. It's okay that this is a lengthy process for it is through this lengthy process that you are provided the opportunities to discover more about yourself, healing and freeing yourself from the captivity of the world. The pain will be unbearable at times but the rewards of true independence and freedom are vast. Let yourself fully feel all your emotions. Surrender to them as you claim the strength that lies deep within your being. Strength you had yet to harness before and burst from the flames as the warrior you were destined to become.

Not On Faith Alone

Life is a beautiful creature that ebbs and flows between the joyous moments and those of darkness and difficulty. All moments of life have the potential to become a positive, transformative experience as we navigate our way through each moment learning lessons, gaining wisdom and insight, and strengthening our minds and souls. Our successful navigation through life's most difficult times aren't contingent upon faith alone that we will resurface. Rather it is the combination of faith and action that brings us forth from the ashes and sets us free. The speed at which we break forth from the shrouds of darkness is dependent upon our own level of involvement in our life's path and recovery from life's struggles.

I have been coping with periodic bouts of depression since my first surgery 20 years ago and I have been struggling with a particularly long episode of depression for the majority of this year. Although I feel uncomfortable proclaiming that I have successfully found my way through this episode at this point, I am noticing improvements albeit small at times and greater at others. Depression is a roller coaster, taking us on great highs on our good days and great depths on our bad days. The better days are increasing in number and I have been able to start tapering off of my anti-depressant medication. I am in the process of scheduling counseling sessions as well. My process this year has been backwards as the combination of counseling and a regiment of anti-depressant medication is actually clinically shown to be more effective than one method by itself. Sometimes though the darkness is overwhelming and we are only able to handle and function so much before we are overcome with the heaviness of it all. To protect ourselves, sometimes we must tackle one issue or treatment at a time as we obtain a greater grasp on ourselves and the difficult situation we are facing before we are able take additional action. Making the effort though to tackle our struggles is a necessary action.

It is with this action that we are able to see how the pieces of life may fit together even when individually the pieces don't appear to fit or ever will fit. Often the pieces of life require our action to alter individual pieces or moments so that each may find its connecting piece, without our intervention and effort we merely prolong or halt the process of connecting together moments to allow for change within a situation. Looks can be deceiving until a combination of time and action help guide more pieces together, allowing us a clearer glimpse of the larger picture of life. With each glimpse our faith is renewed and our action gains momentum, furthering the cycle of recovery. Yet without this action, our recovery remains stagnant as we passively wait for the darkness to lessen and life to improve itself. We cannot idly sit by waiting for life's greater days without our own participation in the process and our life. Passivity allows life to happen to us, not us happen to life. Action with the faith that there will be better days empowers us to live life zealously and actively.

Stop waiting for a situation to change, for life to improve, for that one day. Your faith for those better future moments is screaming out for your action to join and help make that change. Life is ever altering the course; in order to succeed at our dreams and goals we must change with the course. Find new footing, modify our goals and efforts as needed, and play on.

Self Care

When we are presented with moments and events of extreme emotional distress and overwhelming stress, we place ourselves and others around us in danger. Perhaps it is not a life threatening or immediate danger but the stress carries over from ourselves to others as it able to affect those we encounter. Stress quickly and easily will take its toll on our bodies, our minds, and our relationships.  It becomes a poison seeping through ourselves into the air, tainting every aspect of our lives. Daily functioning is sacrificed, relationships are strained, and physical symptoms begin to appear.

Last week was a particularly difficult time for me as my mind was unable to control my emotional distress, no longer could I hold back tears and anger, the depression pushing for a release. I had difficulty focusing on my tasks and responsibilities at hand. I feared my emotions and the sense of losing control. My mind and body were becoming exhausted from the burden. My mind began to create minor issues for me to fixate on rather than the source of distress. My mind was frantically trying to protect itself from danger and no longer would I be able to forgo intense self care.

Self care is not always an easy task to submit ourselves to as we tend to make excuses and feel guilt or shame for requiring self care. Self care is necessary for every individual. It doesn't matter how we choose to provide ourselves the gift and necessity of self care as long as we provide ourselves with it. If we fail to do so, we risk greater damage to ourselves and those around us. Our minds cannot continue without self care, it will lead to a worsened state of mental and physical health.

My self care rituals vary depending on resources, the source of emotional distress, and options available. At times socialization is most valuable and others solitude is preferable. I reached out to friends for support and activity, which helped distract and process feelings but as the pressure continued to mount I knew I required solitude and peace to allow for self reflection and serenity.

I feel most serene when I am within nature, isolated from the busyness and distraction of others. I located a secluded rental within the countryside and planned out my weekend of solitude. As I entered the property my stress and outside concerns began to fade. I let the stillness of the land enter my spirit and draw out the heartache and depression through tears and reflection. I tended to my psyche as I socialized with the farm animals on the property, engaged my creative side with skull painting, and pampered myself with my own in home spa. I was saddened as I said goodbye to the horse I connected with so much during my stay and watched the land disappear in my rear view mirror as I left the gate and turned the corner down the country road. I didn't want to leave my oasis away from the world, away from reality. But my time away provided enhanced clarity and recovery of my soul, allowing me to re-enter the world with the ability to resume daily functioning without fear.

Self care needs vary among individuals and situations but finding what makes you happy, what distracts you and helps you gain closure or take steps closer to a resolution, is key. We can all spend time watching television and vegging out but this isn't truly self care. Self care is more than escaping the world. Self care is loving yourself and loving yourself enough to do what you need for your well being. Self care is a preventative measure against harm from the effects of stress and emotional upheaval. It is holistic in its approach encompassing the cognitive, emotional, physical, and social realms. You can find a list of ideas for replenishing your body, mind, and soul here. You deserve time to love and care for yourself. Never forget this.

Helping Someone Who's Hurting

In my darkest moments I realize I need help. The pit becomes too deep, too inviting and I am at risk of being lost. It isn't always easy to open the door and reach out to someone and ask for support through the darkness. Taking that step, feeling dependent on another, and the burden of verbalizing what is wrong when there is little energy left can be daunting and seem almost not worth the ordeal. When I grasp for someone's help there are some words and actions that push me further down into that pit, leaving me feeling hurt, angry, and more alone and the door shuts in my face as I no longer feel comfortable opening up to that person. When someone reaches out to you, that person is trusting you with their hurting soul. You never know when you may be the last person they reach out to, exhausted from the pain.


There are three things that I think we should never say in response to another when that person is hurting and seeking support. Such statements are very harmful and close the door to open communication and support as what is meant to help change someone's mood and thoughts instead dismisses and invalidates that person's experiences, feelings, and thoughts thereby creating the opposite intention and worsening the situation.


1. There Are People Worse Off
Sure, there's someone always going through something worse but that doesn't make the pain one is feeling any less deep. If such a statement is going to be productive and helpful for an individual, the individual needs to be the one to come to this realization. Coming to such a realization on one's own allows one to experience gratitude for their situation versus another, not necessarily increased happiness or reduced depression. Being told that others have it worse so be happy is just like telling someone be sad because others have it better than you. Regardless of the situation or the cause or expected length of it, it doesn't mean that person is going through any less of a deeply painful time. This ignores what the person is feeling and invalidates what they are experiencing as a bothersome, emotionally difficult moment.


2. You're Being Selfish
Selfishness is a subjective label. Actions that may be necessary can be bothersome to others resulting in others to feel that one is being selfish. For example, taking time for self care is absolutely necessary for everyone but does require limiting time for others and other activities which may be hurtful to another. Telling someone they are selfish for their feelings is not helpful, especially if that person is having suicidal ideation. It can be very difficult to appreciate the effects of one's actions on others when they are fighting depression. Labeling, judging, and insulting someone during such a difficult time is not what is going to get someone to change their mood. Listening, supporting, and helping find solutions is what will help an individual with emotional hurt. Try telling that person how you feel about him/her rather than calling that person selfish for their thoughts and feelings. If that person is talking to you about those thoughts and feelings, odds are that person isn't happy having those thoughts and feelings either but needs some help to get to a better, healthier, safer place emotionally.


3. That's a Cowards Way Out
When interacting with someone struggling with suicidal ideation, telling that person that their thoughts of suicide or death wish is cowardice isn't what is going to change their thoughts or decisions. Instead, it leaves the individual feeling judged and dismissed. No one likes to be judged and what is considered cowardice is subjective so that person may completely disagree. Such a statement sends a defeating, negative message to that individual, particularly including a message of decreased self worth and failure as a person - which only increases depressive feelings.

So what are some ways to help someone with depression or suicidal ideation?



1. Listen
Listen to what that person is telling you. Most of the time when someone seeks support that person is just wanting someone to listen to them, not fix all their problems. Talking about our feelings allows us to process our thoughts and feelings so that we may work through an issue. It's very difficult to complete this process without someone to listen to us and listen to us as many times as it takes. We typically require talking it out more than once as each time we are able to sort through the pieces a bit more and learn something new about ourselves or make a step closer to resolution.


2. Empathize
Try to understand what that person is feeling and going through in the moment. When we seek support, we want to be heard and understood. You don't have to agree with the person's feelings, just try to understand what they're experiencing. Empathizing also helps us feel a sense of belonging and in turn this helps us feel safer, less alone, and more apt to rediscover hope.


3. Don't Give Up On Them
Depression is exhausting and draining on the individual with depression but is also on others who are around someone with depression. The answers always appear clearer and easier to someone without depression. With depression, the mind becomes clouded with doubt and hopelessness and it isn't something that can be snapped out of quickly. Depression takes its time and will hold on for years if we let it. The individual needs to process and cope with the issue causing depression. It is much easier to do this though with support and help from others. Try not to become frustrated with the many ups and downs a depressed individual will go through as they sort through and begin to recover from the depression. Take some time for yourself so you're taking care of yourself as well.





If you or someone you know is depressed or at risk of suicide, please reach out.
Life isn't always easy but together we can survive it.

A Deadly Duo

I lay on the cool, hard floor; resting my head upon my dog's shoulders, tears stream down my cheeks, and wrap my arms tightly around his neck. I cling to him for dear life as I contemplate my own life. I'm home alone and no one is due to come around for hours. Thoughts race through my mind consumed by depression.

I enter the kitchen and there he stands facing the window, his back to me. We stand in utter silence, not even able to hear the usual sounds a house tends to create. He makes no acknowledgement of my presence, perhaps he doesn't realize I'm standing behind him. My mind races in the mix of my depression and my anger.


We all have fleeting thoughts inspired by death, whether it's a mere moment of thinking "I'm done, just end it all" or brief anger inspired thoughts for harm to another as simple as "I'd like to hit your car with mine". These thoughts dissipate as quickly as they appear and in the flash of a moment they're forgotten as our mind shuffles around our thoughts, storing some, discarding others, entertaining a few. However, when our mind begins to fixate on such thoughts we know there is more going on within us. I recently shared my own battles - past and present - with depression and anger and the struggles of living with these friends.

Depression and anger are the perfect deadly duo. Depression isolates us from others and activity, burying us in pain and apathy, draining us of life. This is why there are precautionary statements for risk of suicide with antidepressants and as a warning sign for suicide...as our depression lessens, our energy increases and we suddenly have the energy to carry out that suicidal intent and plan we've been mentally preparing but previously didn't have the energy to complete. Anger on the other hand tends to be a mask for deeper anguish, it behaves as a coping mechanism...creating barriers between ourselves and others and within ourselves. With anger we always have an excuse to push others away and to not tackle our underlying issues. Anger gives us the peace of displacing attention from what is really bothering us onto other issues, typically minuscule and fleeting.

Depression and anger, that blissful pair, remind me of a quote from the character Dr. Sidney Freedman from the TV series M*A*S*H  when he states "Anger turned inwards is depression. Anger turned sideways is Hawkeye." Interestingly, Hawkeye combats the Korean War in his own rebellious, authority defying, snarky style and at the end it becomes too much for him to bear and he is institutionalized. No matter how hard we fight, how much we rebel against the atrocities of life we witness and experience, at some point we will find our breaking point if we don't take the necessary self care precautions to protect ourselves from harm - physical or mental.

There are moments in our lives that serve as an alarm, a distress signal. If we ignore this alarm, we may face detrimental long lasting effects. Our alarms will vary from person to person, some need very loud alarms and others require little prompting.

I have endured bouts of depression over the last 20 years and it is triggered periodically, particularly after traumatizing experiences. As college classes resumed after spring break vacation, I returned to school and although my body was present, my mind wasn't. Being around others, away from the safety of my home, and the stimulation of a busy environment overwhelmed my psyche as it attempted to recover itself from a traumatic experience the week before. I was unable to function at work or school until my mind could recoup from my recent trauma and address the issues at play affecting me. Had my professors and myself ignored the distress signals of depression, crying episodes, hyper vigilance, and severe anxiety my acute stress disorder could easily have progressed into post traumatic stress disorder with long lasting negative effects. Instead, we heeded those alarms and with assistance I obtained the professional care and help I needed to resume a functioning daily life.

My family and friends joke about my temper and the subsequent venting meltdowns that occur until my anger becomes smoldering rather than fiery. I have experienced extreme anger beginning after my first round of surgeries and complications. I was angry about my health, ostomy, and life changes. I developed post traumatic stress disorder and depression, I coped with these diagnoses through anger. I was surprised when a co-worker chased me down a hallway shaking a small bag of tortilla chips offering them to me as consolation and to calm my fiery temper down after a meltdown. Being chased with chips served as an alarm to me and I realized that I needed to work on my temper again.

When depression and anger combine forces, we are left fighting against ourselves and the world. Depression and anger work together in magnificent synchrony to isolate us through withdrawal and creation of barriers in an effort to destroy us from the inside out, feeding off of each other and our experiences of trauma, pain, and heartache. We begin to lose ourselves amidst the battlefield of depression and anger, we begin to say and act in ways that are not like us as we are pulled harder and fought over between this duo. This is a wake up call to pull back harder and break the grasp of depression and anger so that you may escape and return to yourself. If we don't, we are pulled closer and closer to death whether by our own hands, worsened health complicated by the depression, anger and stress that is evoked, or through risky situations we may place ourselves within due to reckless behavior. Breaking free is not easy but it is doable.

Your psyche wants to protect you, pay attention to the alarms. Take it a moment at a time, seek out counseling and reach out to friends and family. Also check out these other free support resources.

Health Maturity: Reaching New Milestones

Living and coping with a chronic illness from a young age pushed me into a level of maturity my peers wouldn't reach for decades. The responsibility of taking care of my own health, appointments, medications, diet, and more aren't typically tasked by most individuals until they reach at least young adulthood and if in good health, even years afterward. In my young years I learned a multitude of lessons providing invaluable skills and values to last me a lifetime. I learned perseverance, ambition, how to thrive and survive, hard work, responsibility, compassion, empathy, health intelligence, my body, fear, distrust, hopelessness, and anxiety. It is these last lessons that became so ingrained within my psyche that I was left with Post Traumatic Stress Disorder and emotionally crippled, fixated in an inability to mature and grow to complete independence and trustfulness. During health crises, I would regress to a child like state and mentality filled with terror.

Due to this fixation, I remained with the same doctor, a pediatrician for 20 years. My parents are always available to help support me through my health issues and in the past I required 24 hour care while in the hospital. I feared being alone and I feared doing too much myself while hospitalized due to pain and risk of increased pain. For example, I usually require multiple tries for an IV and once successful  I refused to move my IV arm as I learned that increased movement causes the IV to require replacement faster and I typically required a new IV at least once per hospitalization. I was rarely left alone due to the combination of lethargy, pain, fear, and difficulty completing tasks.

After 8 years of stabilized health and no hospitalizations, my streak ended. I was unexpectedly faced with multiple challenges I've been dreading for years in addition to hospitalization. I am in the process of obtaining an adult GI doctor and my doctor has been out of the office due to her medical assistant's death. As a result, I didn't really have a doctor assigned to follow me and provide orders when I suddenly required an adult GI doctor.
Due to ongoing depression, I restarted taking Zoloft medication and began experiencing lack of appetite. I was surviving on primarily cheese and crackers for 1.5 weeks. During this time I became dehydrated and Wednesday morning my blood pressure bottomed out to 88/58 resulting in near fainting. I fell backwards and hit my head at work. My coworkers forced me to the ER. My stubborn self wouldn't have gone to the hospital had I fallen anywhere other than work and  my coworkers knew it. I happened to be having a GI bleed this day as well - a normal monthly event for me. I was to be released from the ER after receiving fluids and I was scheduled an appointment with my to be  new GI adult doctor for the next day to be followed by a scope. As I was leaving the ER my blood pressure bottomed out again and this time I would remain in the hospital for four days. The hospitalization would lead me to new milestone achievements in my level of maturity. I was given a new IV without any tears this time. After I settled into my room, I sent my mother home and I spent the majority of the days and throughout the nights on my own. I provided my own care, even taking a shower. I received upper and lower scopes - my first ever scope with my pediatric GI doctor to be present. I require general anesthesia for scopes as I wake up otherwise and I have a preferred anesthesiologist who my pediatric GI doctor always tries to schedule with due to my level of comfort and trust with this particular anesthesiologist. These scopes would be performed with another anesthesiologist and a partner of my new adult GI doctor. I was anxious regarding the anesthesiologist and although I previously visited with the GI doctor and felt comfortable with him, I was overcome with anxiety and tears in the procedure room. The anesthesiologist and nurses provided reassurance and I quickly drifted off and awoke in the recovery room. I was informed that I have a few stomach polyps and four ulcers in my ileum and biopsies would be performed to test for cancer and Crohn's Disease. The GI doctor explained that ulcers in the small intestine are common in Crohn's and would like to cover all bases in my care. At my last scope in 2007 I had polyps in my stomach and small intestine. It was at that time my pediatric GI doctor gave the prognosis of developing stomach cancer by age 30. I'll turn 30 in just over one month. I anxiously await the result of my biopsies.
That night I ate my first solid food since prior to the hospitalization and that night I suffered the consequences of severe diarrhea and pain. I was given morphine for the pain and experienced negative side effects including intense nausea and intoxicated symptoms. After receiving Zofran, I required Phenergan to stop the nausea. The following day another partner of my new adult GI doctor visited with me and released me once I felt ready, stating he understood that I know my body and what I need better than any of the doctors.

I was discharged and I'm still coping with the inability to eat very much food due to severe pain. This is similar to how food affected me after my surgeries in high school. It took years for my body to adjust to food and only experience intolerable pain after large or rich meals. I'm extremely frustrated with this return to debilitating pain with any amounts or types of food but am taking it a moment at a time to readjust and resume my normal eating habits.

I made it home with my health, sanity, and a lot of milestones to be proud of. I survived a hospitalization without constant care, stayed the nights by myself, without my pediatric GI doctor overlooking my care, my first scope in 8 years, and changed doctors. I truly dreaded all that was to come about during this trial but I survived and am filled with a sense of hopefulness, relief, and pride. I can't believe I made it through especially with minimal difficulty and only brief PTSD symptoms.  I've been frightfully dreading these milestones for decades and all in one week I finally surpassed each one. Reaching a new level of health maturity has provided me confidence in my ability to face future hospitalizations, procedures, and changes.

Celebrate your milestones for each takes thousands of small steps 

to reach that moment in your life.