Showing posts with label Activity. Show all posts
Showing posts with label Activity. Show all posts

Thursday, May 30, 2013

Away from Home

travel life's a polyp

For the Memorial Holiday we went on a camping trip and while preparing for our holiday getaway there were many concerns to account for in an attempt to allow for the most enjoyable trip.
Anytime I want to participate in physical activities, particularly away from home, I must consider a number of factors such as food, restroom access, breaks and the amount of physical activity. Each of these contribute to my health, severity of bothersome symptoms, and level of activity.

In Evils of Food, I discussed all the concerns surrounding food and how food affects my daily life. For our camping trip, I tried to stay away from just the usual camp foods of hamburgers and hotdogs as these foods are very greasy and almost always cause a SBS flare up. One evening we had grilled chicken and vegetables with a rice mixture. But even for this healthy meal, I still had to consider which vegetables to have as some vegetables such as fried potatoes are typically upsetting. I relented for one of our  lunches to having Mexican food. I was able to combat the SBS flare up into a mild flare up by taking an extra Lomotil  in the late afternoon, being careful of the timing in order to prevent an adverse side effect of extreme constipation if taken too late in the evening thereby altering the usual satisfactory effectiveness of my daily Lomotil on the following day. If I took an extra Lomotil too late, it would still be in effect the next morning thereby altering my whole medication schedule for the next day resulting in too much binding. Later that evening we made Smores, I had to limit myself to 1 Smore as another one would have pushed my intestine over edge especially after a Mexican lunch.

Restroom access is an absolute concern for any outing away from home.  In Access Denied, the ongoing concens and fears of being denied restroom access and restroom restrictions were discussed. When we reserved our camp site, I made sure to reserve a site that was close to restrooms in order to reduce wait time when a restroom was necessary. Even with having a restroom within 100 - 200 feet, at night I had to drive to the restroom in order to arrive in time and to reduce the amount of physical activity that inevitably increases SBS.  At times I even considered sleeping upright in the car parked at the restrooms during the nights but after 3 trips a night, I was able to endure until morning.

I also have to take care to watch my activity as movement increases my SBS and is futher complicated by restroom accessibility. There were many nature trails and hiking that we could embark upon and that I would have loved to have completed, but once again I had to mind the amount of activity and the proximity to a restroom in order to prevent SBS and accompanying misery. Even to go for a swim takes careful consideration of the timing of eating, walking to the swim area and the length of time between preparing for swimming and actually going swimming. The planning and participation of activities also depends on the severity of bothersome symptoms, if only slightly bothersome I'm able to enjoy activities for a longer time period and a fuller range of activities. However, if symptoms are severe then I'm rather limited to sitting still with little food or fluid intake or will be faced with increased SBS symptoms.

None of these concerns stopped me from enjoying or participating in activities on our camping trip, I just simply had to be aware of the possible side effects so that I could plan accordingly which allowed me to make decisions and alter activities to reduce the risk of such side effects for a more enjoyable trip.

I can't think of any activities that I haven't been able to partcipate in in some way because of my health.
Knowing our bodies and how they react to varying situations is vital for our survival. By being able to predict based on previous experiences, I'm able to make decisions to allow for optimal activity participation and comfortability.

Thursday, July 12, 2012

A Plan for a Plan

life's a polyp

Planning for an activity away from home and specifically in a location you're not sure about the access to restrooms, is tiring and difficult at times. Yet, I never really thought about my thinking about that.
For those living with bowel and bladder disorders, this is a huge concern. I feel as though my life revolves a toilet. What a disgusting thing for my life to revolve around.

From small to big plans, that toilet is forever beckoning. For instance:
Every outing I want to go on, every activity I want to do, my immediate thought is restroom access.
For the 4th of July, my family and I went to a local park to enjoy an evening of music and fireworks. So all day I watched my food intake, packed up my porta-potty survival kit, and went to the restroom several times right before leaving the house. Then upon arriving, again I tried to limit my food and fluid intake and resist the need to use the restroom for as long as I could. I enjoyed my evening but at every turn, that toilet crept into my thoughts.
My husband and I will be purchasing raw land to build on in a few years. I'm very excited about this new adventure. I'm even looking forward to maintaining the property until we are ready to build, so I'm planning my mowing trips so that I can keep it under control for when we do build and my thoughts stop dead in their tracks and I begin to worry about being able to mow when there won't be any restrooms easily accessible due to location. Again that toilet is calling!
I traveled to Europe with my family a few years ago (and would like to again in the future) and restroom access was a giant concern and issue! Some places wouldn't allow you to use restrooms, some activities couldn't stop for a bathroom break for hours, some activities I couldn't even do because of bowel issues. That damn toilet!

So what do we do?
Sit at home, spending all our time with that infuriating yet so necessary and ingenious invention or do we go out, take the risk and enjoy what we can?

Because the truth is, as much as it sucks and sometimes hurts....if we let it stop us from doing at least part of what we want, then it will take complete control of our lives and we'll spiral to an abyss. And an abyss is very hard to climb out of, trust me.
It's like with any illness, we have to accommodate it. Some things we're going to have to change, but we don't have to change everything. So instead of getting to mow until it's done, I'll have to mow for a while and take a 20 minute drive for a restroom break before I really need one.
I can still travel but I'll need to plan on needing restroom access, know when I should take a break before I need the break, and do the activities I can without fretting about it.
But if I plan for that, then I can still enjoy and complete my other plans. And so can you.



Sunday, May 20, 2012

Evils of Food

life's a polyp

There are so many activities and hobbies that I enjoy that I want to participate in but sometimes I just can't. Sometimes walking  inside from the car is a difficult task in itself much less any real physically strenuous activity.
The evils of food, that wonderful tasting, life preserving particles of food create infuriating, excruciating obstacles. How I hate thou!
Due to having a total colectomy and the majority of my small intestine removed, I have Short Bowel Syndrome and must take medicine to help keep my stomach and bowel calm and controlled in order to function. In addition to SBS issues, food also causes severe stomach pain, cramping, and a delightful soundtrack of very loud stomach rumblings that you can even see move across my stomach like some alien life form trying to break forth from my abdomen. Granted, the rumblings and pain have improved some since the subsequent years after my last two surgeries. My stomach noises could easily be heard across a very large room and once caused my professor to literally jump in the air in fright. I previously absolutely could not allow myself to eat any ethnic foods due to debilitating pain for the period of 1-2 days. Now I am able to eat a variety of foods as long as I'm wise about my intake.

My itinerary isn't planned out by what I want to do but what I think I will be able to do, depending on how my stomach and intestine is reacting to the food I've eaten. And not just the food I've eaten recently or even anytime during that day,  but what I've eaten the day before. You see, there are an extreme amount of variables related to food that affect my body and it's performance. I must consider:

  1. How do I feel the day before the activity
  2. What did I eat the day before the activity - best to eat something light and small
  3. Am I having a lot of stomach pain and cramping
  4. What time do I need to wake up in the morning in order to allow my stomach/bowel medicine to start to work
  5. Mustn't eat breakfast if it can be helped
  6. If my medicine still hasn't started working, I must weigh the benefit vs the harm of eating breakfast as sometimes breakfast will cause my medicine to kick in but other times it will make my bowel worse thus the debate
  7. Don't eat anything else until after the activity and drink very little fluids until afterwards
  8. Stand and walk as little as possible until activity has started
  9. Take sitting breaks as frequent and as long as possible during activity in order to prolong ability to participate in activity
If any of these variables come into play, the activity is frequently very difficult to participate in and enjoy. 

I need to make a distinction, that my diet habits to help control my health issues and to feel good are not bound by the same diet recommendations of Crohn's and Ulcerative Colitis. 
Those with Crohn's and UC frequently are recommended to following certain diet protocols as certain foods will increase or agitate inflammation causing symptoms to worsen. 

For me, food in general is upsetting to my body. I feel my very best when I don't eat. When I don't eat I am not struck with stomach pain and cramps from eating or SBS issues. Only problems are that I really enjoy the taste of food and one must eat to survive. 
So I try to eat light, non-greasy, small portion foods whenever possible as these do not upset my stomach and bowel as much as a heavy, large meal does. 

I don't know if there is another that experiences the same issues with food in the same way as I do, although I imagine it is similar to Crohn's and UC flare ups. But either way, it makes the day very hard to plan.