Chapter in Collaborative Books
Magazine
- Ostomy Canada Society - Summer 2025 Edition
- Ostomy Canada Society - Fall 2024 Edition
- Elephants and Tea
Guest Posts and Interviews
- Elephants and Tea
- National Organization for Rare Disorders
- Global Genes
- Courage to Shine
- Patient Worthy
- PatientWing
- Navigating the Storms
- Imagine We
- Chronic Warrior Collective
- Rare Revolution Magazine
- Medical Herstory
- Patients Rising
- Advanced Tele-Genetic Counseling
- With Love, Alexa
- #Rareis...
- Spoonie Lifestyle
- The Spoonie Mummy
- There is Always Hope
- Imagine Life Therapy
- Young, Sick and Invisible
- Travel Breathe Repeat
- Despite Pain
- The Frozen Mind
Podcasts
- The Painful Truth Podcast
- Rare Connection
- One Condition
- Shining Brightly
- Two Mics One Joe Soochh
- AYA Cancer Unfiltered
- My Invisible Disease Podcast
- I Am Not My Pain with Melissa Adams
- Patients Rising Podcast
- 123 Momsquad
- Body Talk with Becks
- The Bearded Advocate
- Invisible Me
- The Rare Disorder Podcast
- PodcastDX
- Peer Med Podcast
- Because We Are Strong
- We Have Cancer Show
- With Love, Alexa
- Grief and Reimagining Advocacy Goals
- Walking a Fine Line as a Squeaky Wheel: Communicating With Doctors
- How Therapies Treated My Musculoskeletal Injuries from Rare Disease
- My Approach to Taking Medications
- Tips for How to Set Boundaries With Others
- Calling Out with Grace
- Grappling With the Possibility of Having Another Rare Disease
- What to Know About Support Groups
- Disclosure in the Workplace
- Walking a Fine Line as a Squeaky Wheel: Communicating With Doctors
- How I Gradually Changed My Relationship With Medical PTSD
- Getting Emotions Out: Why It Matters and How to Do It
- How Persistence and Medical Partnership Impacts Diagnosis
- Role Reversal and the Patient-Caregiver Relationship
- Making My Home Disability Friendly Now Rather Than Later
- Developing Elevator Pitches for Rare Disease Advocacy
- Making My Home Disability Friendly Now Rather Than Later
- Becoming a Do-Not-Resuscitate Patient
- Questions I Ask Myself on My Healing Journey
- Shifting the Focus of Goal Setting
- Getting Back Into Advocacy After Burn Out
- Which Specialist Needs to Know Your Symptoms? All of Them.
- Creating Business Cards for Rare Disease Advocacy
- Lessons Learned in Navigating Medical Debt
- A Guide to Awareness Proclamations: What Are They and Why Do They Matter?
- I’ve Learned Self-care. What About Self-love?
- How Persistence and Medical Partnership Impacts Diagnosis
- Rare Disease Advocacy Is a Constant, Never-ending Opportunity
- When We Medically Gaslight Ourselves
- Fighting Misconceptions Can Save Lives: Rare Disease Surveillance
- The Power of the Words We Tell Ourselves
- Setting Boundaries: What Self-care Looks Like
- Grieving Loss in the Rare Disease Community
- When We Are Eager to Undergo Medical Tests
- Why I've Only Told a Few People about My Ostomy
- What a Bad Day Feels Like with Short Bowel Syndrome
- Not Everyone Copes the Same Way with Having an Ostomy
- What I've Learned about Managing a Chronic Illness at Work
- Why I Need B-12 and Iron Supplements for Short Bowel Syndrome
- 9 Things People With Chronic Illness Need From You
- The Truthful Answer I Give When People Ask How I'm Doing
- When Living with Chronic Illness Feels like Embarking on a Journey
- Navigating the Dating World When You're Divorced and Chronically Ill
- How I Found My Inner Strength after My Life Unexpectedly Changed
- When Another Person with Chronic Illness Judged My Invisible Illness
- How I Learned to Balance work with my Chronic Illness
- When Chronic Illness Makes Your More Vulnerable in Relationships
- When You Interact with a Person with Chronic Fatigue, Please Understand This
- When My Doctor Didn't Believe I Knew What was Best for My Body
- 6 Things People with Chronic Illness Share with Each Other
- When You're Facing a Life Alone with Chronic Illness
- To the Medical Professionals Who Want to Make a Difference
- Camaraderie of Chronic Illness
- Don't Dismiss My Cries
- Gratitude for a Surreal Life
- To the Broken Hearted
- Living with Chronic Fatigue
- When Your Doctor Doesn't Believe You
- Dear Medical Professionals: Your Patients Need and Appreciate your Compassion
- In the Stillness: Rest and Healing Before Tomorrow's Climb
- Let the Fire Burn You: A Story of Love, Loss and Healing
Contributions
- Global Genes Guide to Medical Gaslighting
- Global Genes Guide to Grief
- Horror Stories from the Ableist Society
- Covid-19 Vaccine Experiences from People with Chronic Conditions
- 16 Chronic Illness Bloggers Share Their Top Posts for 2020
- How to Survive the Holidays When Chronic Illness & Disability Cause Pain
- Sometimes, Physical Pain Isn't the Worst Part About Chronic Illness
- The Great Life Report by ME/CVS Self-Help Guru
- 10 blog posts for helping you survive valentine’s day with a chronic illness
- Supporting People on Rare Disease Day
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