tag:blogger.com,1999:blog-2298918764307626057.post6606603641264922624..comments2023-11-30T11:24:14.724-06:00Comments on Life's a Polyp : What FAP Means to MeJennyhttp://www.blogger.com/profile/16198921480286128160noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-2298918764307626057.post-33805551086047429232015-02-12T19:07:55.614-06:002015-02-12T19:07:55.614-06:00Absolutely agree with you. I think when viewed as ...Absolutely agree with you. I think when viewed as merely a gene, we give away all our hope for disease management and betterment. It's hard maintaining a realistic view and finding positive things, it's so easy to focus solely on the negative and it's a struggle for anyone. I hope future test results will be better and wish you all the luck for management. :)Jennyhttps://www.blogger.com/profile/16198921480286128160noreply@blogger.comtag:blogger.com,1999:blog-2298918764307626057.post-50436637265076802302015-02-12T18:24:43.528-06:002015-02-12T18:24:43.528-06:00I love that you're able to see your disease, b...I love that you're able to see your disease, both it's positives and negatives. <br />My mom, who has the disease, said recently that she doesn't think of it as a disease, but as a gene. I think it's denial. I grew up with that denial and formed my opinions of FAP based on her avoidance of it. Yeah, we had our colons removed, but I thought I'd be fine after that.<br />I came to a harsh reality last year with bad test results, and even more horrible ones this year. I'm glad I hit that reality though, it means I live my life differently. Yeah, I wish I didn't have the disease, but I do, and I think the only way to make it through is to have the outlook you share here. Positive and negative. Reality. <br />Thank you for always sharing your story so others can feel like they aren't alone.Anonymoushttps://www.blogger.com/profile/06749790736742160535noreply@blogger.com